Cardiologist Testing

I went in today to have all of my tests done and I must say that I was thoroughly unimpressed with the entire office. I will not be seeing this cardiologist again for any kind of follow up care.

First Unknown Test

When I got there, they took me back for one test where I had to lay perfectly still and this miniature ct scan looking machine moved all around me. I kept asking the tech what the test was and the only answer I got was a heart test. Gee, thanks. Pretty sure I could have figured that one out on my own!

Dealing with an Idiot

Then the guy came in to start my IV for the nuclear meds. I asked if he could use my PICC line to which he responded that no one should be doing anything with it other than the hospital. I said well, I infuse my own meds every night. He said do you know you have to flush this thing? Yes, moron, I’ve had it for seven weeks and it still works so I obviously know how to flush it.

At this point I’m thinking I didn’t want him to use it! He asked me what medicine I used and I replied Rocephin, to which he said what’s that? I was floored – it’s not like that’s some alternative medication! Then he asked why I was on it and I said I have Lyme disease. He laughed! Laughed! And then asked me if I had been playing with deer?!

I was absolutely furious but being that he was about to put a needle in my arm, I kept my mouth shut. Then it was back to the waiting room. Next was the ECHO. It was a little difficult with lying on my side with the PICC line but other than that, it was uneventful.

Nuclear Stress Test

Back to the waiting room again to wait on the nuclear stress test. When I finally went back for it, she hooked up all of the monitors and I started walking on the treadmill. Every minute or so the speed and incline would adjust. By the four minute mark, my heart rate was at 200. They inserted the nuclear medicine and I continued to walk, completely out of breath. (Remember, I have been under doctor’s orders to do NO physical activity since last November).

Several minutes later, she told me it was going to increase again and I told her I would be running at that point and didn’t think I could do it. I felt like I was going to pass out and my heart was about to come out of my chest. She agreed to stop the test.

After a recovery time where she she said my rate was not recovering as it should, I was sent back to the waiting room. The next and final test was doing the ct like scan again. I tried again without luck to find out what this test was!

The Results

Then back to the waiting room where I was the last patient left. I had literally spent all day in the doctor’s office. Finally, he called me back and let me know that my tests looked good as far as heart function. But there is an abnormal rhythm and I had over 700 PVCs and 600 PACs during my holter monitor. But he said he wasn’t concerned. He also said it was still showing tachycardia but he also wasn’t concerned about that either. Basically, he blamed the entire thing on my thyroid and said the Lyme wasn’t responsible and my heart was fine.

Knowing my heart was fine, despite the abnormal tests, was reassuring, but it seemed odd to just write off all of these abnormal results. He did say I need to follow up with the Lyme doctor because the pain I had been describing in my chest was not heart related.

So I will go back and get her take on it. And right now, I’m really missing my old cardiologist!

The First Cardiologist Appointment

After getting to wait for over an hour, I was finally taken back to an exam room. She came in and did an EKG, then went to find the doctor. He came in and after he introduced himself basically didn’t look up again as he sat typing on his laptop.

I finally asked what the deal was and he said that my EKG showed an abnormal rhythm. I asked about the tachycardia and he said my heart rate was fast, but the concern was with my rhythm which he just said was “off”.

He wants me to wear a holter monitor (which I have on now) and come back for other tests including an ECHO and a nuclear stress test next week. So, I, of course, agreed.

I asked if this could be Lyme related and he said that it can attack the heart just as it does other organs but most people will recover after the Lyme is under control, if that is the cause. That was somewhat comforting I guess in that it was less likely that the damage would be permanent.

When the nurse came in to put the holter monitor on, I asked her if they had the adhesive pads for sensitive skin. She looked at me like I was crazy but I know they make them because I’ve used them! She said no and proceeded to attach all of the leads. While she was doing that, I explained I was allergic to adhesive and I hoped that I wouldn’t react in the 48 hours I have to wear it. She then took tape and attached it over every single lead. Huge pieces of tape – triple the size of the actual lead!

I stood there in pure amazement at her utter stupidity. I told her again I was allergic to adhesive and she said well just take it off later if it bothers you. Wow.

I walked to the front to check out. When I got there, they had me sign a waiver and consent for the nuclear test and also informed me I was committed to the appointment. If I cancel, I owe them $325. I also had instructions to be fasting and to bring food with me for when they allow me to eat as I would be spending the majority of the day with them.

I went to the bathroom and promptly removed the tape and then headed home. Looks like it’s going to be an interesting week next week!

Just Add It To The List: Heart Problems

Today I had another visit with my Lyme doctor. There’s not much to tell as far as improvement in symptoms is concerned, or so I thought.

Increasing Dosage

First things first. When she heard that my symptoms still aren’t improving, she said we could increase the dosage of the Rocephin. Good! She said that you can have problems with the gallbladder on higher dosages and it seems to happen more in women. So to attempt to protect my gallbladder, I need to eat as low fat as possible with no greasy foods, etc.

This should be one interesting diet. No sugar, no gluten and now low fat too. I’m going to take a wild guess and say that eating out is about to be impossible. In fact, eating period may be impossible! haha No gluten and no sugar are fairly easy since it’s basically the low carb I’ve been doing all along. But low carb is high fat so if I have to cut the fat, I technically need to add back carbs….since I’m not just going to survive on protein! But I have to add back carbs without gluten. We’ll see how this goes.

I have enough Rocephin through next Tuesday so she said to start doubling up now and they’ll call in the increase in the meds. I haven’t had the best of luck with them calling in ANYTHING to the pharmacy so I think I’ll wait to make sure it’s approved before I start doubling what I have left.

My Heart

After we talked about my progress, or lack thereof, she did a quick exam. When she was listening to my heart, she paused for a long time. Then she asked me how much caffeine I drink. When I replied I had not had anything other than water since November, she got a perplexed look on her face and went back to listening again.

She finally stepped back and wanted to know if I could feel the palpitations. My response was “what palpitations?” She said they were quite obvious so she was surprised I couldn’t feel them. My first thought was that it was just tachycardia, which I’ve had issues with off and on for over ten years. But she said no, this wasn’t just fast, the rhythm was off.

I did let her know about the chest type pain I have been feeling on the left and that it was twisting around to my back sometimes. It isn’t constant and doesn’t seem to have a rhyme or reason to it. She became even more concerned upon hearing this. I have mentioned it at other appointments but that was with the NP who always brushed it off.

I told her I would make an appointment with my cardiologist to follow up and she said no, it couldn’t wait and I had to see someone familiar with Lyme. Turns out that Lyme can affect your heart as well. At this point I’m thinking there’s not anything it can’t affect!

She left the room and came back with an appointment to see a cardiologist the next day. I was impressed and scared. This was obviously serious if she made the appointment for me.

So tomorrow afternoon, I will be seeing a new cardiologist.

The Tally

And I just realized it’s the end of the month so time for a new tally. It’s jumped quite a bit since last month – in fact, it’s almost doubled!

Total billed to date: $40,482.02. My insurance has covered all but $1,365. But I also don’t yet know what my co-pays are going to be on the IV meds. I could be getting a bill later for that.