Held Out As Long As I Could

Saturday before last (20th), I started feeling bad. Nothing terrible – just didn’t feel good and felt like I was starting with a sore throat. On Sunday, I woke up with a definite sore throat and had been waking up in the night with the feeling like I had sand in the back of my throat (hate that feeling!).

On Monday, I went to my doctor because I was going out of town for work at the end of the week and I didn’t want to have a sinus infection for a plane ride! So at this point, it was just sore throat, feeling like I had “gunk” in the back of my throat, beginning to lose my voice and my neck had been hurting (which I continually attributed to sleeping on it wrong). No fever.

They swabbed me for strep – negative. She looked at my throat and said it looked perfectly fine. So I’m like great, then why do I feel like this? She gave me a Z-pack and sent me on my way.

I got the prescription filled and then started thinking about how much I really didn’t want to take another antibiotic! Plus, if I’m being honest, it freaks me out a bit. This is how I felt when the Lyme really started kicking up – like I had a cold all of the time and I was exhausted. And Zithromax is one of the medications my Lyme doctor uses sometimes instead of Doxycycline.

I decided not to take the medication and just hold out to see if my immune system would handle it. I convinced myself it was allergies and started taking Zyrtec. The sand in the throat feeling continued a few more nights. And then this past weekend, I started coughing – not a lot and kind of random. Today, I haven’t been able to stop coughing and my head feels clogged. And my voice is nice and raspy!!

So I just gave in and took the stupid medication. I held out 9 days – you would think if my immune system was going to kick in and help me out, it would have done it by now.

Please, please, please don’t let me herx on this. Let the Lyme really be gone and for this to JUST be a sinus infection.

I made it 25 days without any antibiotics. Maybe after this five day course, it will be a long time before I have to take another one!!

Ahh…Cheese, I Hate You Now!

Over the weekend, my husband found a new gluten free snack for me. It was Cheetos Simply Natural. Yesterday, I took them to work for lunch. It didn’t even occur to me that these would have milk or cheese in them (I’m just not used to thinking about it yet – so focused on gluten and sugar!) so I ate a full serving of them.

About two hours later, here comes the brain fog – which I haven’t had any episodes of since I cut out the dairy. But at the time, I figured my old symptoms were just getting kicked back up and I was just having one of those days. After all, last time, the dairy/cheese caused nausea and an upset stomach. I also had a massage on my lunch break and that can release toxins, etc, so I figured it may have been from that.

In all my infinite wisdom (ha!), we decided to try Mexican last night since the Cheetos didn’t cause any stomach issues. I ordered my usual (actually the only thing I can usually safely eat at a Mexican restaurant as far as gluten is concerned) and by the time we were leaving, my stomach was rumbling and felt like it was doing somersaults. And the brain fog that had eased up came back hard core.

Now, I definitely know something is going on with the cheese (still haven’t tested out other dairy products except butter for cooking). Supposedly with the cross reactions with gluten, your body picks up on that and reacts as if you’ve had gluten so you get all of the same symptoms.

Once again I’m left to wonder if this has been the cause of my symptoms for months now and it’s just now gotten bad enough to also cause the digestion type issues as well. I wish I had a food diary now as I’m curious if the days I had nausea when I was back on the Doxy, if I also had cheese that day. Not to mention the days I had brain fog!

Maybe this explains why the brain fog would appear so randomly and 99% of the time, it would be after lunch! That would be so nice if that was the case as that means it’s something I actually have control over! Not that I want to have to eliminate yet another thing from my diet but if it makes me feel better, then I will.

The good thing, if you can even say it that way, about cross reactions is if you come off of them for several months (3-6 is what I’ve read), you may be able to introduce them back without issue. The theory is that it gives the gut time to heal and once that has happened, it will no longer recognize non-gluten substances as gluten.

In the meantime, I’ll be doing more label reading and even more eating at home. The thought of going somewhere to eat and telling them I can’t have gluten, dairy or sugar is just too much! They’d probably just bring me a piece of cardboard! haha

So I’ll give it a few days to let this work its way back out of my system and then start tracking symptoms. I’m also going to start keeping a food diary again so I can keep track with any correlation between the food I eat and how I feel.

This is so ridiculous!! If this keeps up, I’m beginning to wonder what’s going to be left for me to eat!

One Week Without Antibiotics

So it’s now been a full week since I ended all of my antibiotics. Right now, I’m just continuing with my thryoid and adrenal meds, probiotics and magnesium. Every other day, I take biotin and vitamin D and when I remember, I take my multi. I have to admit, it has been great to not have to choke down 20-30 pills a day! I may end up adding back some of the supplements at some point but for right now, I’m happy where I’m at.

Another thing that happened this week is we think we may have discovered another food allergy. I’ve read a lot about cross reactions with gluten where your body recognizes other things as gluten as well and you react in the same way. Well, we went to eat Mexican over the weekend (I had my usual safe food of bean dip with chips fried in a separate fryer) and within just a few minutes, my stomach was cramping and I had intense nausea (to the point of finally giving up and taking Zofran several hours after it started). I didn’t think much of it then – just figured maybe my body was still adjusting to being off of antibiotics.

On Sunday night, we made a gluten free pizza. I ate one piece and within about ten minutes, here comes the nausea again. So we started trying to find the correlation between the two and the only thing that was the same was the cheese! With that, it essentially ends any eating out for me as well as many of the “convenience” type foods I was eating like pizza. Probably not such a bad thing. 😉 I’m going to cut it out for a bit and see what happens.

Right now, it doesn’t seem to be all dairy as my husband has been cooking vegetables with butter and there hasn’t been an issue with it. But I haven’t tried any other dairy products. I may attempt that this weekend – we’ll see!

I literally knock on wood every time before I say this, but I’ve been feeling good the past two days. I had some brain fog issues on Tuesday but I just tried not to focus on it too much and that night, I came home and was in bed by 8:00p and asleep shortly after. I slept until the alarm went off at 6:45a the next morning. It made such a difference in how I felt the next day, I’m going to continue trying to do that.

While my head was all foggy, I was looking up cures for brain fog – not really expecting to find anything but just to see what was being talked about in regards to it. It helped me to see that what I describe as brain fog is what others describe too – so I’m at least using the right term when I tell doctors that. The interesting part is that many articles also referenced different causes of brain fog including thyroid, adrenal fatigue and gluten intolerance. Um, check, check and check!

Many of my Lyme symptoms disappeared a long time ago. The symptoms I’ve not been able to kick have been the brain fog and the fatigue. With the fatigue, I think it will just take time because my body has been through so much. But what if the brain fog issue is really from my thyroid not being optimized or from the adrenal fatigue or from the gluten intolerance and cross reaction to other foods as well? What if it’s not from the Lyme at all and I’ve actually been done with all of the Lyme symptoms for a while? I still think about when my head was the clearest it has ever been since all this started and that was when I was in the hospital for my gallbladder and given stress doses of Cortisol for my adrenals. I think it’s too early for me to attempt to answer that one, and maybe I’ll never be able to but it’s interesting nonetheless. Yet another theory of mine – as if I need any more! haha

Also, my period started today. In the past, the few days leading up to my period and the actual week of my period have been pure hell. But other than the brain fog on Tuesday, I’ve been okay. It scares me to even admit it because I’m terrified it will be taken away from me again. But I have to remember to stay positive with this. I keep reminding myself that I didn’t herx at all with the Doxy or Rocephin this time and the herxes I thought I was having with the herbals were likely allergic reactions!

So far, so good. I hope this continues. I’ve been praying for a strong immune system and a healthy body. I hope my prayers will be answered!

Now off to bed to make sure I get plenty of rest again tonight!

Doubting My Diagnosis

I just finished up seven days of IV Rocephin and seven days of Doxycycline. She ran blood work again and my platelet count had rebounded to 274 so she deemed me finished. My rash had disappeared by Saturday and my fever finally broke on Saturday as well after hitting a high of 102.5 on Friday afternoon.

So why am I doubting my diagnosis?

1. Everything I’ve read says that the rash shows up 3-5 days AFTER the fever and other symptoms start. That’s one reason why it’s so difficult to diagnose because when you first present, you just seem like you have the flu. My rash started at least by the 8th of June and was there before then – I just don’t remember exactly when. But I know it was there on the 8th because I was a little worried when I went to get my massage and just told her to focus on my back and neck because of it.

2. Everything says that the rash starts as pink macules around the wrists and ankles and then spreads. Mine started on the inside of my thighs and spread from there. It did start spreading when the fever started but I never had the pink macule rash. And it was never even on my ankles or wrists.

3. The petechiae rash that I had (small little dots) is considered an indicator of late stage RMSF. Wouldn’t I have been hospitalized if that was the case? Especially since mine has always been that and it had been around for at least three weeks when the fever started? RMSF is suppose to be deadly if you don’t get treatment in eight days and you need treatment by day five to avoid complications.

4. The fever was really odd. I had a fever on Sunday, nothing Monday to Wednesday, and then a fever again beginning on Thursday that broke Saturday. The fever typically doesn’t come and go – or at least not that I’ve read.

Maybe I’m trying to justify it or just flat our deny the fact that I managed to get bitten by yet another tick that happened to have other tick diseases when I spend zero time outside? I don’t know.

All I know is I’m glad that I did get treatment. RMSF is certainly nothing to play around with so even if there was a thought it could be that, I did need treatment. The treatment she gave me also treats Lyme so that’s not a bad thing either.

I really think it was an allergic reaction to the herbal meds. I’ve read in the past few days that allergic reactions can cause fever as well. And when I looked up pictures of rashes from drug allergies, it looked just like mine. And it would make sense that it did spread as I kept increasing the dosage of the medication.

If that’s the case, maybe I wasn’t herxing at all. I was just having an allergic reaction to the medications. Because in seven days of Rocephin and Doxy together, I didn’t have a herx reaction (*knock on wood* – I haven’t said anything to anyone because I didn’t want to jinx myself). When I started on Doxy originally, I had a big herx on the 4th day and with Rocephin, it was the 2nd day. This time, other than a little nausea if I didn’t eat with the Doxy, I couldn’t even tell I was taking anything.

I guess the only way I would know for sure is to try the herbal meds again but I’m scared to do that now. Also the antibodies to RMSF and Ehrlichia should both show up on blood tests in a few weeks too.

For now, I’ll just be glad I had treatment and that maybe not having a herx means the Lyme is under control.

As always, time will tell….