After getting dumped by my infectious disease doctor, I started searching for another doctor. In that search, I ran across several in other Lyme groups who had been treated exactly the same by my doctor – she just dropped them out of the blue. They did give me a recommendation of someone who will stick by you for the long haul in another state. I looked her up and she is $425 per appointment. She doesn’t take any insurance. The treatment and labs may or may not be covered depending on how my insurance decides to view it since she’s not a covered physician.

So I decided to do another webinar and tell him my story to get his opinion. I decided I would go with whatever he said at least in the interim until I can find someone else. First, he did say that he agreed that my treatment should not have been stopped. I should have continued to be treated until my symptoms had been gone for at least two months or no improvement after several months of differing kinds of treatment.

He recommended that I try the herbal medications, Banderol and Samento, until I can find another doctor. He gave me the dosing schedule and said I can continue to add the Doxy to it if I would like. I think I am going to go the herbal route but not sure about continuing the Doxy too. It would be nice to not have to worry about the sun sensitivity from the Doxy during the summer months.

With the herbals, they go after the cyst form as well (the one my doctor didn’t think existed). So I guess we will find out how right or wrong she was when I start this based on how I react. If there is a cyst form that this penetrates then I could expect to have a pretty decent herx (I would assume). I have read accounts from some who had an increase in symptoms after the first dose.

In the meantime, I’m going to continue to look for other alternatives. I also spoke to someone who was seeing the doctor who diagnosed me and was not impressed with her knowledge or treatment of Lyme. So I’m very thankful she was able to find out what was wrong but it looks like I made the right decision for treatment by not continuing with her. She said that she felt like it was all about the money and she continually did things like “I think I’m going to start you on this but not until the next appointment” and she felt like she was just delaying it for another appointment fee.

Several different people emailed me about the one that charges $425 and they all really liked her. Plus she had/has Lyme as well so she understands all that surrounds it. But I figured I can do the herbal protocol for about four months for the price of one appointment with her. So I’m going to try it first.

I’m still really disappointed in my ID doctor, but it is what it is. And being upset about it isn’t going to change what she did. So I just need to figure out what the next steps are going to be and keep moving forward.